Tuesday, November 27, 2007

Tie Dye Moments





James and I had made tie dye onesies for our trip to Indiana in August. I wanted Haelley and Jason to have matching shirts for pictures. Well, we never got any pictures of just the two of them in August. Elizabeth brought Haelley's onsie, so we got many pictures of them interacting at more lively ages.

Miscellaneous




There were some miscellaneous pictures during our week that I wanted to share because they are fun. The one of Jason was at the Grand Canyon in his warm attire (which we have very little of in the southern part of the state). Notice the "foam" about the lips. He breathes in just fine through his nasal bolsters, but out is a bit harder. As he breathes out a tiny little opening and closing of his lips creates bubbles that sometimes linger.

More Grand Canyon




At the Grand Canyon





We took many pictures at the Grand Canyon. It is truly an immense and special place. Joshua took many pictures of three mule deer, some from a very short distance away - even as little as a few feet like the one here.

Shearer Family Pictures



In our living room and in the middle of God's handiwork (at the Grand Canyon).

Michael, Elizabeth and Haelley Pt. 2














We had time just to play at home and enjoy getting to know Haelley whether sleepy, fussy or excited. Elizabeth was worried that Haelley might be unsociable while here because she isn't always happy to be away from home, but she did wonderfully.

Michael, Elizabeth and Haelley



Michael, Elizabeth and Haelley arrived on Monday, the 19th. That night we celebrated Michael and Elizabeth's birthdays which were only a few weeks before.













Then Tuesday we walked down the street to one of the many parks and played. Even the babies saw some action.

Saturday, November 24, 2007

A teaser




Michael, Elizabeth and Haelley left this morning to go back to their home in Indiana. Though the visit went by entirely too fast, it was great to have them here for a time. This was John and Haelley's first meeting. They hit it off very well. We took about 180 pictures this week, so this is just the beginning, but I wanted to give you all something. (I know you've been dying to see my grandbaby.) As a special bonus I am including a picture of Jason and Haelley too. That way you get my two favorite babies all in one!

Friday, November 16, 2007

Cinderella

Nancy has had an absolute and obsessive interest in Cinderella for a long time now, and she's only three. She had all of her brothers (and her mother) assigned to different characters in the movie and faithfully called each by that name. She had parts of the movie memorized when she was only two. A little girl at church knew about her fascination and gave her a Cinderella dress for Christmas last year. Because she needs girl fixes now and then I helped her do her hair and adjust her dress this morning so we could take pictures. This is the result. She was so thrilled. (Although I do have to say that just about anything at all thrills Nancy. She squeals with delight over the most trivial things.) Enjoy my little Cinderella...

Thursday, November 15, 2007

By request

Some have asked how Jason is doing. He is doing well. Tuesday seemed to bring a noticeable change. I felt like I got my boy back finally. Overall, he has been happier and more like he was before surgery. Wednesday night he was very fussy and spitting up a lot, though. I thought maybe he was getting sick, but today has been just fine. It's a bit complicated to figure out what is bothering him because he has great potential for ear trouble, he's recently had surgery and he's teething. Feeding him is still not like it was. I am not expecting it to be anymore. He appears to have lost muscle tone making sucking inefficient. I am concerned about that because of speech development, but I am not worried about him eating. We have the ability with the Haberman feeder to "force" feed him.

Jason's development has taken off where it left off. He is working so hard at scooting/crawling. He can scoot some, but it's still mostly accidental. I love watching him think. He's a bright little boy. We were worried that his noises would change after surgery, and they did. However, the growly sound that he was making before surgery returned today. It was pretty exciting.

P.S. Michael, Elizabeth and Haelley are scheduled to arrive on Monday! I am so anxious. We plan to go to the Grand Canyon with them while they are here. I am looking forward to that too. I'm sure I will have pictures and stories after they leave.

Wednesday, November 14, 2007

Changing the subject



Posts here have been mostly of Jason - and for good reason. The sweetie has been through a lot of noteworthy stuff. However, he does have 10 siblings who have their own news now and then. Today Joseph is in the spotlight. He is very good at making card houses. (Though I don't think "houses" is quite the right word. They sprawl a bit more than houses.) The one he made today is worth showing off, methinks.

Friday, November 9, 2007

The Third Day



I don't have much time to write, but I wanted to put pictures here of Jason. Today hasn't been a wonderful day. It hasn't been awful either, though. Feeding him is still a challenge. Frequently, it is a fight to get him to eat. I will be very glad when that part is over. Overall, I think he's doing very well.

John referred to Jason as Hitler yesterday. The pictures reveal why. (Thankfully bruises are temporary.) The profile was yesterday, the other today. You can tell in the one of today that the swelling is going down partially due to the wrinkled look of the skin.

Wednesday, November 7, 2007

Commentary

Earlier John helped me post all the pictures surrounding the time of Jason's surgery. I knew that several would be looking here for some news, so I wanted there to be something. However, I didn't have time to write about our day then, but I might try (at 2:40 AM) to do a little of that.

First of all, let me say that I was doubting my physical and emotional ability to cope with yesterday. Monday was a difficult day for me because I was feeling so spent. It made me really worry about whether or not I could do what a mom would need to do. I spent time praying about that Monday night, and I know that others were praying about that as well. Well, God answered those prayers so generously. The day yesterday, while not worry or problem free, was so much easier in every way than I expected! I continued through the hospital experience to feel strong and optimistic.

It's now 2:44 AM and Jason is "calling." I will write more later...

10:44 PM: Later turned out to be a long time later. Jason has had a good day today. Every person should have such a pleasant personality. He has smiled and even laughed today. He was not normal, but trying very hard to be.

Getting him to eat yesterday was a big challenge. Today has been better. I just shifted my thinking and fed him smaller amounts more often. By tonight I was able to increase the quantity. I am hoping that we can gain even more ground tomorrow. It is common for them to lose some weight after lip and cleft repair surgeries, but he is so small that I hope to minimize that.

He is supposed to wear elbow splints to keep him from touching his mouth. A mom who has walked in our shoes gave us an alternative idea of tying ribbon around his wrists and pinning the other end to his clothes. Neither thing has been very successful. He works his way out of the splints - accidentally so far. Because he is a very capable sitter he just folds himself over to get to his hand if they are tied at his sides. The best thing was to use both, but even then the ribbon kept coming untied. I'm still brainstorming to come up with something better. In the interim, we are making sure that he is always covered with a responsible set of eyes.

I was hoping to take a picture of him today but didn't get it done. It might be best. I have been working, a little at a time, to clean the dried blood from his nose. I think one more session will complete the task, which might be a good time for a new picture.

I wanted to tell about the blessings in the day yesterday. Of course, Jason was unable to eat within several hours of the surgery. I was dreading the nearly hour long drive to the hospital, thinking he would cry the whole time. But he didn't. He went off to sleep. Once at the hospital he was happy and playful. The picture yesterday of him in the toy car is precious to me. Joshua put him in there while I was coaching on how to keep him from falling out and pretty much being spastically worried. But Jason knew just what to do. He grabbed the steering wheel and navigated safely around the pre-op room (with Joshua as his manpower.) After his "drive" he got a little bit fussy and fell asleep in my arms. I got to hold him for about 30 - 40 minutes while he slept. That was truly a gift.

While I enjoyed the cuddle time our team of doctors and assistants came in one at a time. I liked them all. The doctor encouraged me so much by saying how remarkably Jason had changed since birth. He said the pictures taken in his office were incredible and that he was well prepared orthodontically for a good outcome. That made all those mouth tapings worth their hassle. The anesthesiologist was wonderful. She was so pleasant and sweet. She even showed me pictures of her four children and remarked how great it was that I had eleven. Those encounters made handing Jason over much easier. I didn't even have tears in my eyes.

Another huge blessing came during surgery. The pre-op nurse had checked and discovered that there wasn't a place for me to use my breast pump. I had brought my newly acquired car adapter cord, but didn't relish the thought of scrunching down in the back of the truck cab in the parking garage to carry out my duty. I decided to try one more thing and ask the waiting room volunteer if there was a private place for me. She unlocked a conference room in the waiting area for me to use. It wasn't perfect either, but so much better than trekking to the truck and using its cramped quarters.

The surgery was supposed to be 1 1/2 - 2 hours but lasted 2 1/2 hours. Thankfully, with the things I had to do and little conversations here and there, the first 2 hours passed pretty quickly and calmly. I was very antsy after 2 hours because I had to wonder if there was a problem that caused the longer time. That was not the case, however. The surgeon and the anesthesiologist both said everything was perfect - not even any little problems.

Our post-op nurse was very kind too. She was relaxed and very comfortable with me calling the shots about going home. That was super. I never felt pressured to leave or to stay based on some ominous criteria. We left when I felt like Jason was ready to go. It made the transition from hospital to home much smoother.

Thank you all for praying. I have been so grateful for God's blessings and provision. I really (as I said earlier) doubted my stamina to walk through this surgery, but it was really a very easy day yesterday.

Tuesday, November 6, 2007

Monday, November 5, 2007

Here we go...

I am heading off to bed after completing the preparations for tomorrow - the big day. Jason has had pre-surgery pictures, a thorough bath and even a go 'round with the scale. He weighed 12 1/2 pounds on the eve before surgery. There is nothing left to do but jump. And so I will go to bed and hope to be rested for the big plunge. Thank you so much for praying for us. It has been a weepy day for me, but I am comforted to know that God's will is always, always good.

Sunday, November 4, 2007

Life in the Desert


Did you know that the saguaro cactus only grows in the Sonoran Desert? Neither did I. In fact, I didn't even know what the saguaro cactus was until I moved to the Sonoran Desert. It is the cactus that you see in westerns that would look like a man if you put a hat and face on it. It grows here because the Sonoran Desert gets more rain than any other desert in the world. Interestingly, though, it's root system is not much to talk about. The tap root only descends three feet below ground, and it's peripheral roots are only about one foot long. It is perfectly suited to its exclusive home.

It struck me when we moved here that there are still plants growing in the desert. And not just palm trees and cacti. One of the most beautiful flowers I've ever seen I met here. It is a big loose flower in a beautiful blushed shade of fuschia. In or on it (I haven't yet discerned) is a little cluster of tiny delicate white blooms. Gorgeous. With irrigation quite a few crops are grown here though they are not native to the area. One unexpected and comforting thing we saw soon after moving was a corn field! Just like home! Roses are a big item here also. Have you ever seen an agricultural field of roses? Just this morning we saw a cotton field. And just as sentimental as the corn field is a field of milo! One wonderful lady from church even brought me homegrown tomatoes that rivaled my Dad's. (Dad, you will always be the best tomato grower ever, but these were up there, if you know what I mean.) I only thought that desert equaled barren.

You all likely know that this cold and snow loving mama didn't want to move to the intensely hot desert. Life has seemed so lopsided lately. It has not been barren of happy things, but the heartaches and difficulties have been plentiful. Moving was a heartache unlike any I've ever experienced because I walked away from three of my children. It was an act of my will, not of my heart. Already, though, I am grateful for several things. (Isn't God wonderful that way? He always blesses our even mediocre efforts to do His will.) One object of my gratitude is the desert itself and its lessons for me. I thought it would be barren. It's not lush like southern Indiana and Illinois, but it is not barren. Even in the hot, moisture deprived climate some growing things thrive. While I may not have in my possession all that I think would make my life lush with happiness, I am not empty handed. The blessings of God are still overflowing, and there is life in the desert.

Saturday, November 3, 2007

A Visit


Two of John's sisters are traveling from their homes in Washington to Mexico for a little get-a-way. They had a long layover in Phoenix, so we got to visit with them today. It had been a very long time since we'd seen them. It was good to introduce children and catch up a bit. Jason was uncharacteristically grumpy and refused to eat though we knew he was hungry. Finally John managed to get him fed (while walking around - go figure) and then he settled down and went to sleep. The picture isn't wonderful, but at least I remembered the camera - and to use it!

Jason's surgery is 2 1/2 days away. I am half anxious to get it over with and half dreading it. It's weird how one's feelings can conflict sometimes. He is just a happy little guy. When he is smiling and twinkling and laughing and giving kisses I feel so guilty knowing that we're getting ready to turn him over to the ominous scalpel. Yes, yes, you don't have to tell me, it's the right thing to do. It's best. If it weren't it wouldn't be happenin'! I guess it's like I've advised so many others: down the road it will be just another story...